Who in the word has a blog that gets updated every once in 3 years or so? Who does that?
I guess I do.
I was shocked to see the link while Googling myself. That's right. I occasionally Google myself. I saw that the last entry was about the Crazy Mom Podcast which honestly was going to be great. I was just days away from releasing the first episode. I was editing and marketing. I had a following of excited friends.
Then I got a call.
Something is going on with Mason. (His father) He explained symptoms that he saw. I noted symptoms that I saw. I was coaching cheerleading at the middle school and was currently at an away game when we both realized we were describing Type 1 Diabetes. He called the pediatrican immediately. It was during the 3rd Quarter that I got the call that Mason's blood sugar was over 500 and they were taking him to Children's Hospital.
Then a year of sadness. A year of doctors. A year of grief and life will never be the same. Shots. Injections. Insulin.
Life...with a bag. (Medical bag)
It took me a year to finally see light at the end of the tunnel. It was the next Spring when I started to get a hold of myself and come to terms with this life-altering diagnosis. Mason was a trooper giving himself his first shots within 3 days of diagnosis. I was a mess. I was up all night checking on him. I was terrified he wouldn't wake up in the morning. I cried. I looked for cures. I prayed so much. But he was the hero and eventually, it was all going to be okay.
It was about a year after being okay with the new life that Covid-19 hit. The next day, Ethan was going to start driving school. We had a clear path to 16 in 6 weeks. However, the world had other plans and we were shut down overnight. We all lived on edge but spent so much time cuddling and spending time together at home. Matt worked throughout the pandemic. He's the best.
The fall came with challenges that made Covid-19 seem like nothing at all.
During Lorelai's soccer game, I received a call that Maddox had been found unresponsive in the shower face down. They were taking him to Children's Hospital. We raced there to meet the ambulance. After testing and EEG's they found he was having seizures. The day he was diagnosed, an hour after they called me at work to tell me he had epilepsy, the school nurse came to me and said mason had to go to Childrens right away, his blood pressure and heart rate were out of control.
Coincidence or Curse...we ended up in the EXACT same room we were in during the weekend with Maddox.
Testing for both kids. Then, we find Ethan having symptoms of epilepsy as well. More tests. This fall, we found out 2 kids have epilepsy and Mason has pediatric hypertension. It felt like it was never-ending. I had to find ways to pick myself up each day wondering what I had done for my children to be punished so severely with all of these medical issues. I didn't even tell people because I wondered if I sounded crazy.
Meds. The meds helped. Our last seizure was New Years Day. Ethan's 1st Seizure. And it as horrific as I knew it would be. It took him 5 days to recover and even longer to feel normal. Our clear path to adulthood just looks so different. We have each other though. And we are generally happy for that.
I couldn't have done anything with my Matt. God bless that man who never faltered and just held us all up. He's the greatest friend and love a person could every ask for. I don't know anyone gets through this kind of life without a Matt.
